Table 1 Characteristics of included studies
From: Interventions for Indigenous Peoples making health decisions: a systematic review
Study | Country | Team | Topic | Participant Groups | Number of Indigenous Participants | Age Range (years) | Methodological Framework | Data Collection | Analysis |
|---|---|---|---|---|---|---|---|---|---|
*Dirks et al., 2018 [70] | US | Indigenous and academic partners | Develop and evaluate a decision support tool with AI/AN, for discussion about depression | AN/AI who will discuss depression management | 375 | 40.7x | Qualitative | Survey, focus groups | Thematic analysis |
Frerichs et al., 2020 [71] | US | Indigenous and academic partners | Evaluate the impact of the colorectal cancer (CRC) screening decision aid adapted for AI adults on their CRC-related outcomes | AI considering colorectal cancer screening | 104 | 50–75 | Pre-post study design, pilot test | Tools with scales | Statistical analysis |
Grace et al., 2018 [72] | Australia | Indigenous and academic partners | Examine whether Aboriginal children in child protection services relate and respond to the Kids Say cards | Children in child protection | 20 | 8–18 | Qualitative | Interviews | Content analysis of qualitative data |
Jull et al., 2015 [73] | Canada | Indigenous and academic partners | Describe the adaptation and usability testing of the Ottawa Personal Decision Guide (OPDG) to support decision making with Indigenous women | Members of an FNIM women’s community who have left situation of violence or impacts of residential schools | 19 | 20–60 | Qualitative | Focus groups, interviews | Thematic analysis |
Jull et al. 2019 [46] | Canada | Indigenous and academic partners | To tailor and field-test a shared decision-making strategy for use by Inuit in cancer care | Inuit facing decisions about cancer care, peer support workers | 13 | n/r | Qualitative | Focus groups, interviews | Thematic analysis |
Koziol-McLain et al., 2018 [74] | New Zealand | Academic | To test the efficacy of a Web-based safety decision aid (iSafe) for women experiencing IPV | Women making decisions about safety | 113 | 16–59* | Randomized control trial | Tools with scales | Statistical analysis |
Marcynyszyn et al., 2012 [75] | US | Indigenous and academic partners | Describes an adapted Family Group Decision Making practice model and its evaluation among Lakota community for child welfare | Decisions about child welfare | n/r | n/r | Qualitative | Observation | Description of the process |
Montgomery et al., 2012 [76] | US | Academic, unclear on research relationship with Indigenous partners | Describes the development of curriculum that trains AI/AN youth leaders to plan, write, and design comic books to enhance healthy decision making in tobacco use | Youth in afterschool youth program | 6 | 12–15 | Qualitative | Surveys, participant observation, interactive meeting | Description of the process |
*#Starks et al., 2015 [77] | US | Indigenous and academic partners | Develop and evaluate an application to engage AI/AN in conversation about depression with healthcare providers | AN/AI who will discuss depression management | 36 | n/r | Qualitative – case study | Interviews, documents, stakeholder consultations | Stakeholder engagement consisting of meetings, mapping phases, iterative discussions, critical reflection to describe the final DM-DST and project cycle |
Umaefulam et al., 2022 [78] | Canada | Indigenous and academic partners | To adapt the Early RA patient decision aid for use with Indigenous patients | Indigenous patients facing RA decisions | 16 | 28–69 | Qualitative | Interviews | Thematic analysis |