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Table 2 Important disease aspects for patients with PsO

From: Incentives for Danish healthcare management based on a pilot outcome-based, patient-centric management model in psoriasis and psoriatic arthritis: the non-interventional IMPROVE study

Supercluster Cluster Subcluster Representative statement Cluster mean Subcluster mean
Having PsO Social and mental problems, shame Self-worth disappears Felt like a leper 4.0 4.0
Discomfort, pain, symptoms I think it has been a serious handicap It’s really awful for us 3.7 3.7
Treatment At the doctor’s/the doctor knows my body It’s a matter of being taken seriously as a complete person It’s difficult to relate to the figures quoted by the doctor 3.7 4.0
Long waiting time for treatment At first I was sent from pillar to post – they had no idea what was wrong with me 3.7 3.9
How do I know I’m getting the best treatment? I feel that the doctors are experimenting on me 3.7 3.9
I don’t have any information - I’m worried I’ve read that inadequate treatment can result in complications 3.7 3.5
Medication and treatment Biological therapy is miraculous! All my symptoms disappeared in 14 days (using biological drugs) 3.5 4.9
What happens if the medication stops working - or if I’m not given it anymore? Will my symptoms come back? (major concern) 3.5 4.7
I’m a bit cautious about what I put in my body (medicines) I don’t want to take MTX due to the side effects - the package insert didn’t say what was good about MTX 3.5 3.9
I have to take medication for the rest of my life This isn’t the end (if this treatment doesn’t work, then it’s on to the next one) 3.5 3.2
I’m getting good treatment I think the hospital I attend is fantastic 3.5 3.2
Side effects My skin has got thinner because they’ve rubbed all kinds of creams into it 3.5 3.0
Surroundings Relationships with partner/others I feel very alone with my condition I don’t understand why there aren’t network groups (the PsO association) 3.2 3.9
Intimacy - what does my partner think? What does my partner think about how I look? (‘my backside could give a baboon some competition’) 3.2 3.4
What do other people think - do they find it repulsive? I’ve met people who didn’t want to shake hands with me 3.2 3.0
No understanding of the restrictions caused by my condition (I can’t have a dram) A lot of people have useful advice for me – knowing better than I do 3.2 2.6
Own attitude/personal view My condition controlled my life until I learned to accept it You have to make sure that it doesn’t take over 3.2 3.8
Will my children also get it?/I don’t want to have children! I decided early on that I did not want to bring children into the world – this was not going to happen to them 3.2 3.3
I’ve decided that what other people think isn’t my problem Getting to the point where you’re not afraid to be seen in public is a victory 3.2 3.2
You learn to live with it The condition is incurable 3.2 2.9
Consequences of the condition/The condition itself Consequences for working life My condition rules me out for some jobs 3.2 3.7
The importance of lifestyle Stress can provoke the symptoms 3.2 3.1
I’m restricted by symptoms and treatment When planning a holiday, you have to allow for when medication has to be taken etc. 3.2 2.9
  1. MTX Methotrexate, PsO Psoriasis