Text of Themes (n=6) | Subthemes (n=16) | Quotes from participants |
---|---|---|
Exchange efforts – build relationships among researchers and research users who have shared interests | 1. Multisectoral collaborations and consolidated efforts enhance information exchange | Need for multisectoral collaboration and communication between data generators and users to produce data, foster data use and inform health policy; more interlinkages and exchange needed between GBD collaborators, which include policy-makers, analysts and other data users; researchers need to explain data effectively so wider audience can understand in order to facilitate exchange, otherwise meaning of information will be lost; bringing people together e.g. conferences or trainings valued as helpful and important; gaps seen between academia and public health realms, which can be bridged by collaboration; collaborations between departments, such as Ministry of Health and Ministry of Education seen as crucial to make best policy; barriers include lacking time and resources to facilitate these partnerships |
Efforts to facilitate user pull – relevant information optimally packaged | 2. Interactive nature of data visualization tools facilitates data use, accessibility and understandability | Data visualization tools engage users and their audiences with interactive nature and ease of use, making data more useful; eye-catching aspect of visualizations makes impact by grasping users’ attention |
3. The GBD Compare tool offers a variety of functions meeting the user’ needs | GBD tools facilitate the comparison between countries and counties over time and DALYs; GBD tools provide subnational level data and show risk factors; GBD identifies gaps in data and can help to target areas that need further attention; use data visualization tools for quick access to and delivery of data | |
4. Complexity of using GBD Compare can inhibit data access and use | GBD Compare requires regular use to understand and maximize utilization; users report more guidance and training needed to use GBD Compare as insufficient user understanding of GBD Compare is limiting | |
5. Missing functionalities and technical difficulties of GBD visualization tools limit usability | Lacking ability to look at all causes of disease and customization functions in tools, such as saving previous searches; GBD tools lacking subnational level data for certain countries; difficulty downloading SDG charts; need to repeatedly run searches as may not work first time; GBD tools not compatible with all browsers; GBD tools need to be adjusted and updated | |
6. User engagement enhanced with GBD oversight team | GBD oversight team of deputy directors-general provides technical and/or policy assistance to both policymakers and researchers on GBD Compare, which aids in maximization of tool use; importance of GBD advisory entities highlighted by users | |
7. GBD methodology education and training yields more buy-in and engagement | Need to increase GBD engagement at local level in settings where users lack buy-in, knowledge and/or methodology as increased buy-in once benefits of GBD seen | |
8. Increased guidance and recommendations needed from IHME on how to use GBD data in policy | More guidance requested as lacking explanation for global patterns and recommendations for potential policies that could be implemented, such as examples of successful policy interventions for certain diseases e.g. meta-analysis | |
Push efforts – identify actionable messages | 9. Data visualizations utilized as means to communicate data | Use data visualization to better understand data by quickly, uniquely and clearly conveying information; visualizations prompt action and support policy recommendations to stakeholders by grabbing their attention and illustrating data |
10. Data visualization tools act as valuable complementary source in coordination with local tools and/or systems | Data visualization tools identify and fill gaps in local information or data; GBD tools used with other methods, such as coding, when local data not available | |
Production of research – priority-setting processes | 11. Transparency and consistency of data sources needs to be maintained | Users highly value and appreciate transparency of data sources as data is more trustworthy; discrepancies between GBD and local data and within GBD data cause confusion and distrust among users so less willing to use data |
General climate – support and value placed on linking research to action | 12. Adequate awareness, resources and time should be devoted to KT efforts as KT acts as catalyst for production of evidence that informs and supports policy recommendations | Insufficient time, awareness and/or resources contribute to less effective KT; KT should be prioritized among many factors and competing needs involved in decision-making as more likely to result in action; funding contingent on quality of researchers’ KT plan incentivizes prioritization of KT; KT valued as important process leading to informed decisions and make stronger policy recommendations; KT important in facilitation of evidence accessibility and understandability; throughout data generation, consider KT to provide better information |
13. Overall lacking buy-in and awareness of GBD and data visualization tools from country leadership can lead to minimal utilization | GBD and/or data visualization not known, incorporated or used by policy-makers in some settings as certain country leaders resistant to using outside data and skeptical of GBD estimates, particularly in lower income countries; leadership attitudes or unawareness negatively affects user interest | |
Data use | 14. GBD data used to forecast, plan and prioritize health policy | GBD data used to predict future needs and prioritize resources accordingly; GBD data perceived as important part of informing decisions, policymakers and public and ultimately eliciting change; data used to monitor and track progress over time and justify resource allocation and funding |
15. Facilitate and improve accountability; track and monitor progress and trends over time and between countries | Comparison between countries illuminates gaps and thus triggers action; GBD results inform and discern patterns within and among countries |