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Table 3 Data sharing activities of EU research networks

From: Mapping European research networks providing health data: results from the InfAct Joint Action on health information

RESEARCH NETWORKS sharing health data

NETWORKS and PROJECTS receiving health data

Best Information through Regional Outcomes: a Shared European Diabetes Information System for Policy and Practice (B.I.R.O.)

EUBIROD

BRidging Information and Data Generation for Evidence-based Health policy and research (BRIDGE)

ECHIM; EHES; ENRIECO; Euro-Peristat, RICHE project, CHICOS; EuroHOPE; EHLEIS

Italian nationwide longitudinal population-based study on Diabetic Ketoacidosis at Diagnosis of Type 1 Diabetes (DKA - type 1 diabetes)

Joint International Project DKA at onset of pediatric type-1 diabetes

European Health Data and Evidence Network (EHDEN)

EHDEN is part of the Innovative Medicines Initiative Big Data for Better Outcome Program (BD4BO)

European Network for Indicators on Cancer (EUNICE)

EuroCARE; EUROCHIP project

European Injury Database (EU-IDB)

EUROSAFE

Multinational MONItoring of Trends and Determinants in CArdiovascular Disease (MONICA)

MORGAM project; euCanSHare project; ENGAGE project; CHANCES consortium; BiomarCARE consortium; AFFECT-EU project

Survey of Health, Ageing and Retirement in Europe (SHARE)

ELSA; U.S Health and Retirement Study

  1. AFFECT-EU Digital, risk-based screening for atrial fibrillation in the European community, BiomarCARE Biomarker for Cardiovascular Risk Assessment across Europe, CHANCES Consortium on Health and Ageing, CHICOS Developing a Child Cohort Research Strategy for Europe, ECHIM European Community Health Indicators and Monitoring, EHES European Health Examination Survey, EHLEIS Joint action on healthy life years, ELSA English longitudinal study on aging, ENGAGE Engage Society for Risk Awareness and Resilience, ENRIECO Environmental Health Risks in European Birth Cohorts, EUBIROD EUropean Best Information through Regional Outcomes in Diabetes, euCanSHare EU-Canada joint infrastructure for next-generation multi-Study Heart research, EuroCARE EUROpean Cancer Registry-based study, EUROCHIP European Cancer Health Indicator Project, EUROHOPE European Health Care Outcomes, Performance and Efficiency, Euro-Peristat Better Statistics for Better Health for Mothers and their Newborns in Europe, EUROSAFE European Association for Injury Prevention and Safety Promotion, MORGAM MOnica Risk, Genetics, Archiving and Monograph, RICHE A platform and inventory for child health research in Europe
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Archives of Public Health

ISSN: 2049-3258