Table 1 General Data Protection Regulation (GDPR) as an enabler for cross-border health data sharing, linking and managing
GDPR as an enabler | |
|---|---|
Pre-existing laws regarding data privacy and data sharing | GDPR is easier to implement in countries with previously existing and implemented laws regarding data privacy and data sharing |
Anonymized statistics | GDPR defines and enables sharing of anonymized statistics |
New data analysis approaches | GDPR is a facilitator for the introduction of new data analysis approaches which do not require full data sets to be shared as it minimizes data privacy risk |
Patients` trust towards dealing with their health data | GDPR is a big asset for Europe as it makes the system safer and helps with keeping the trust of patients when it comes to dealing with their health data |
Transparency | GDPR enables transparency and facilitates the relationships between the stakeholders GDPR is an enabler as having more transparent agreements can only be beneficial for research and for relationships of all the stakeholders |
User rights over their data | GDPR helps with defining the user ownership and right over the data and specific purposes for which the data can be used It also facilitates development of tools which give control over the data to data owners (patients) and data custodians (organizations) |