Table 2 European research networks involved in health data collection
Research network | Acronym | Years of activity |
|---|---|---|
Best Information through Regional Outcomes: a Shared European Diabetes Information System for Policy and Practice | B.I.R.O. | 2005–2008 |
Better Statistics for Better Health for Mothers and their Newborns in Europe | Euro-Peristat | 1999 to date |
BRidging Information and Data Generation for Evidence-based Health policy and research | BRIDGE | 2015–2017 |
Cancer Control using Population-based Registries and Biobanks | CCPRB | 2004–2009 |
Cancer Registry Based project on Haematologic Malignancies | HAEMACARE | 2005–2008 |
Committee of Nordic Assisted Reproductive Technology and Safety | CoNARTaS | 2008 to date |
Commonwealth Fund Multinational Comparisons of Health Systems Data | MultiCom | 1918 to date |
Comparative Effectiveness Research on Psychiatric Hospitalisation by Record Linkage of Large Administrative Data Sets | CEPHOS-LINK | 2014–2017 |
Comparing policy framework, structure, effectiveness and cost-effectiveness of functional and integrated systems of mental health care | COFI | 2014–2018 |
Deepening our understanding of quality improvement in Europe | DUQuE | 2009–2014 |
Developing a Child Cohort Research Strategy for Europe | CHICOS | 2010–2013 |
Diagnosis-Related Groups in Europe - Towards Efficiency and Quality | EuroDRG | 2009–2011 |
Environmental Health Risks in European Birth Cohorts | ENRIECO | 2009–2011 |
EU Public Health Outcome Research and Indicators Collection | EUPHORIC | 2004–2008 |
European Association for Injury Prevention and Safety Promotion | EUROSAFE | 2007-nr |
EUropean Best Information through Regional Outcomes in Diabetes | EUBIROD | 2005 onwards: EUROBIROD project (2008–2012), EUROBIROD Network is ongoing |
EUROpean Cancer Registry-based study | EuroCARE | 1978 to 2007 |
European Cardiovascular Indicators Surveillance Set | EUROCISS | 2000–2007 |
European Collaboration for Healthcare Optimization | ECHO | 2010–2017 |
European Community Health Indicators and Monitoring | ECHIM/ECHI | ECHIM JA 2009–2012, 3 ECHI projects 1998–2001, 2001–2004, 2005–2008 |
European Health Care Outcomes, Performance and Efficiency | EuroHOPE | 2010–2014 |
European Health Data and Evidence Network | EHDEN | 2018–2024 |
European Health Examination Survey | EHES | EHES pilot 2009–2012, ongoing |
European Hospital Benchmarking by Outcomes in Acute Coronary Syndrome Processes | EurHOBOP | 2009–2012 |
European Injury Data Base | IDB | 2012-nr |
European Medical Information Framework | EMIF | 2013–2018 |
European Network for Indicators on Cancer 2006–2009 | EUNICE | 2005–2007 |
European Urban Health Indicators System Part 2 | EURO-URHIS 2 | 2009–2013 |
Extracorporeal life support association | ELSO | 1989 to date |
Family life courses, intergenerational exchanges and later life health | FAMHEALTH | 2013–2018 |
Global Allergy and Asthma European Network | GA2LEN | 2004–2015 |
Global Burden of Disease | GBD | 2007-nr |
Health Benefits and Service costs in Europe | HealthBASKET | 2004–2007 |
Health Inequalities Indicators in the Regions of Europe | I2SARE | 2008–2010 |
Improved access to health care data through cross-country comparisons | EuroREACH | 2010–2013 |
Improved methodology for data collection on accidents and disabilities-Integration of European Injury Statistics | INTEGRIS | 2008–2011 |
Individualized cardiovascular disease risk assessment across Europe | EPIC CVD | 1990’s − 2009 |
International Cancer Benchmarking Partnership | ICBP | 2009-nr |
International Research Project on Financing Quality in Healthcare | InterQuality | 2010–2013 |
Italian nationwide longitudinal population-based study on Diabetic Ketoacidosis at Diagnosis of Type 1 Diabetes | DKA - type 1 diabetes | 2016–2018 |
Joint action on healthy life years | JA EHLEIS | 2011–2014 |
MAnagement of mental health diSorders Through advancEd Technology and seRvices – teleHealth for the MIND | MasterMind | 2014–2017 |
Multinational MONItoring of Trends and Determinants in CArdiovascular Disease | MONICA | 1980 onwards. Active period of data collection ended around 2000 |
Multiple Sclerosis Data Alliance | MSDA | nr |
Nordic Welfare dataBASE | NOWBASE | nr |
Observational Health Data Sciences and Informatics | OHDSI | 2014-nr |
Operations management and demand-based approaches to healthcare outcomes and cost-benefits research | MANAGED OUTCOMES | 2010–2012 |
Personalized PREvention of Chronic DIseases consortium | PRECeDI | 2015–2018 |
Pooling of European Data to Harmonise Translational Research in Breast Cancer | ONCOPOOL | 2002–2004 |
Quality and costs of primary care in Europe | EUPrimeCare | 2010–2012 |
Quality and Costs of Primary Care in Europe | QUALICOPC | 2010–2013 |
Registry of Congenital Anomalies | EUROCAT | 1979-nr |
Research on Children and Adults Born Preterm | RECAP preterm | 2017 up to 51 months |
Socio-economic inequalities in health and mortality in 16 European cities at the beginning of the twenty-first century | INEQ-CITIES | 2009–2012 |
Surveillance of rare cancers in Europe | RARECARE | 2007–2010 |
Survey of Health, Ageing and Retirement in Europe | SHARE | 2004 onwards; wave 8 is ongoing |
Tackling Health Inequalities in Europe | EUROTHINE | 2004–2007 |