Health data collection methods and procedures across EU member states: findings from the InfAct Joint Action on health information

Unim, Brigid; Mattei, Eugenio; Carle, Flavia; Tolonen, Hanna; Bernal-Delgado, Enrique; Achterberg, Peter; Zaletel, Metka; Seeling, Stefanie; Haneef, Romana; Lorcy, Anne-Charlotte; Van Oyen, Herman; Palmieri, Luigi

doi:10.1186/s13690-021-00780-4

Archives of Public Health

Table 3 Data collections shared with European projects and research networks

From: Health data collection methods and procedures across EU member states: findings from the InfAct Joint Action on health information

COUNTRY	RESEARCH PROJECT	EU RESEARCH NETWORKS AND PROJECTS
BELGIUM	Health Interview Survey	EHIS
BELGIUM	Belgian Health Examination Study	EHES
BELGIUM	Belgian Treatment Demand Indicator Register	EMCDDA
BELGIUM	Health Status Report	EHES
BELGIUM	Initiative for Quality improvement and Epidemiology in Diabetes	EUBIROD
BELGIUM	Initiative for Quality Improvement and Epidemiology in Children and Adolescents with Diabetes	EUBIROD
CROATIA	CroDiab	ns
FINLAND	Different administrative registries	EuroHOPE
FRANCE	Euro-Peristat	Euro-Peristat coordinating center
GERMANY	German Health Update (GEDA)	EHIS
GERMANY	BURDEN 2020-EHIS	EHIS
ITALY	Health Behaviour in School-aged Children	HBSC network
ITALY	Italian nationwide longitudinal population-based study on DKA at diagnosis of type 1 diabetes	Joint International Project DKA at onset of pediatric type-1 diabetes
ITALY	LINFA project: Longitudinal Infant and Neonatal Follow-up towards Adolescence	EUROCAT, EURORDIS
ITALY	European Injury Database	ECHIM
ITALY	Italian Obstetric Surveillance System (ItOSS)	International network of obstetric survey system (INOSS), Euro-Peristat
ITALY	Drug-related mortality and hospitalization in Italy	EMCDDA, ECHIM
ITALY	Moli-sani Study	MORGAM project, BIOMARCARE Consortium, CHANCES project
LUXEMBOURG	European Injury Data Base	Injury Database Network
LUXEMBOURG	Observation of Cardiovascular risk factors in Luxembourg (ORISCAV-LUX 1 & 2)	NESCAV
LUXEMBOURG	Luxembourg’s Birth-Related Health-Monitoring System (SUSANA)	Euro-Peristat
LUXEMBOURG	European Health Examination Survey	EHES coordinating centre
LUXEMBOURG	Luxembourgish Information System on Drugs and Drug Addiction	EMCDDA, REITOX
LUXEMBOURG	Health Behaviour in School-aged Children	HBSC network
LUXEMBOURG	Neonatal Hearing Screening	EUScreen
LUXEMBOURG	SHARE	SHARE-ERIC
PORTUGAL	National Health Interview Survey	EHES; HBM4EU
ROMANIA	Romanian study	ns
SPAIN	Atlas of Variations in Medical Practice in the Spanish National Health Service (Atlas VPM project)	ECHO
UNITED KINGDOM	Secure Anonymised Information Linkage (SAIL) system	ECHIM, Injury Database Network

EHIS, European Health Interview Survey; EHES, European Health Examination Survey; EMCDDA, European Monitoring Centre for Drugs and Drug Addiction; EUBIROD, European Best Information Through Regional Outcomes In Diabetes; EuroHOPE, European Health Care Outcomes, Performance and Efficiency; Euro-Peristat, European Perinatal Health Surveillance System; HBSC, Health Behaviour in School-aged Children; EUROCAT, European network of population-based registries for the epidemiological surveillance of congenital anomalies; EURORDIS, Rare Diseases Europe; ECHIM, European Community Health Indicator Monitoring System; MORGAM project, MOnica Risk, Genetics, Archiving and Monograph; BIOMARCARE consortium, Biomarker for Cardiovascular Risk Assessment; CHANCES, Consortium on Health and Aging-Network of Cohorts in Europe and the United States; NESCAV, Nutrition, Environment and Cardiovascular Health; REITOX, European information network on drugs and drug addiction; EUScreen, Vision and hearing screening programmes for children in Europe; SHARE-ERIC, Survey of Health, Ageing and Retirement in Europe; HBM4EU, EU Network of Human Biomonitoring Laboratories; ECHO, European Collaboration for Healthcare Optimization; ns, not specified

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ISSN: 2049-3258

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