From: Interventions for Indigenous Peoples making health decisions: a systematic review
Author (year) | Brief name and why | What (materials, process) for the SDM intervention | Who provided SDM | How, Where, When, How much | Develop, adapt SDM intervention | Knowledge organizing systems (theory, model, framework) |
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*Dirks et al., 2018 [70] | Pilot of DM-DST-Evaluate effectiveness of DM-DST for AN/AI | An electronic tool (DM-DST) to engage AN/AI in decision making conversations with healthcare providers | iPad application administered by primary care providers or behavioural health consultants | Participants used 20-min decision support tool prior to meeting healthcare provider at primary care appointment | Application developed with community stakeholders for use by AN community members | Nuka System of Care |
Frerichs et al., 2020 [71] | Culturally Adapted Decision Aid -Evaluate CRC screening decision aid adapted for AI | 9-min video (decision aid) to prepare AI to participate in CRC screening decisions | Video disseminated through web, prompts viewers to speak with healthcare provider | Participants viewed online video about screening options streamed or downloaded at home | Video developed by researchers for use with AI communities in eastern US | Social cognitive theory, theory of planned behaviours |
Grace et al., 2018 [72] | Kids Say Cards-Examine response of children to Kids Say tool | Kids Say cards to facilitate conversation and engagement by children in decision making with child welfare workers | Researchers* use with children *designed to be used by child welfare Workers/Professionals | Researchers chose 10 out of 44 Kids Say cards focus group or individual interview (time not reported) to prompt child(ren) in conversation, at community event | Cards developed by Aboriginal community for Aboriginal children | Winangay knowledge—approach guided by National Health and Medical Research council's values of equality, respect, reciprocity, responsibility, survival, and protection |
Jull et al., 2015 [73] | Adapted OPDG (Decision Aid) -Adaptation of OPDG to support decision making by Aboriginal women | A patient decision aid for use by Indigenous women and includes decision coaching | Decision Coach | 60–90 min interviews in community setting supported by decision coach to apply tool to sample decision | A generic decision aid adapted by Indigenous and non-Indigenous team with community partnerships and t with Indigenous (FNIM) women in Canada | Ottawa Decision Support Framework, Medicine Wheel framework for shared decision making |
Jull et al. 2019 [46] | Not Deciding Alone -Promote the use of SDM by Inuit in Cancer Care | A booklet and training to guide conversations between healthcare providers and clients, to prepare for SDM | Peer support worker trained in decision coaching | Trained peer support worker was matched with community member to read and understand booklet and have conversation using SDM strategy in booklet in community setting | An SDM strategy (booklet, training) developed with Inuit community and service providers, for Inuit | Inuit societal values, Ottawa decision support framework |
Koziol-McLain et al., 2018 [74] | iSafe-Test efficacy of web-based safety decision-aid (iSafe) for women experiencing IPV | A web-based decision aid developed for general populations applied with women (includes subgroup of Māori) in New Zealand who experience IPV | Online decision-aid/intervention website | Women in intervention group were provided link and password to website throughout 1-year postbaseline follow-up period to intervention and individualized resources and safety plan; control group offered link and password to website with standardized resources and safety plan Intervention done at home | n/r | Empowerment model and decision science |
Marcynyszyn et al., 2012 [75] | Family Group Decision Making -Promote a decision-making practice model for Native American communities that could be used in Child and Family Services | A Māori Family Group Decision Making practice model, implemented with child and family services setting to bring in Lakota ways of building and sustaining family connections | Independent Coordinator, Agency personel | Independent coordinator convenes family group meeting with agency personnel, after initial presentations family group meets on own to work through information given and formulate response and plan, preference is given to family groups plan, referring agency support family to implement plan | A Māori practice model adapted to Lakota knowledge and culture | Māori traditional practices, adapted to include Lakota traditional values and practices |
Montgomery et al., 2012 [76] | Native Comic Book Program -Train Native youth leaders to create comic books to enhance healthy decision making | A curriculum for AI/AN youth to design comic books for healthy decision making | Project Staff/Trained youth | 2 h sessions over 8-week period during summer after-school program where youth participated in curriculum focused on decision-making and comic book development | A curriculum developed for general youth populations adapted for AI/AN youth | Western-oriented knowledge about shared decision making (model) |
*Starks et al., 2015 [77] | DM-DST -Development of depression management decision support tool | Development of DM-DST for AI/AN to integrate patient priorities and needs into depression management decisions | iPad application administered by primary care providers/behavioural health consultants | Smaller pilot test (n = 20) had participants go through 20-min decision application | Application developed with community stakeholders for use by AN community members | Nuka System of Care |
Umaefulam et al., 2022 [78] | Adaptation of Early RA PtDA -Adapt existing RA PtDA for use by Indigenous patients at point of care | Adaptation of existing paper-based decision aid tool | Displayed at | Cohort 1: 15–45 min in-person interview at clinic and asked to provide feedback when provided with decision aid Cohort 2: 15–45-min video conference or phone interviews about adaptation of decision aid (provided earlier) | An RA decision aid adapted for use by Indigenous people in Canada | Ottawa Decision Support Framework |